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+44 300 30 200 50 | +353 1 531 4837 | +1 844 696 4478 [email protected] facebook twitter facebook twitter buddies specialists events shop contact us 0 items home community about pmp survivors’ stories support us news select page pseudomyxoma survivor the support network for those affected by pseudomyxoma peritonei, appendix cancer and peritoneal surface malignancies if you’ve found pseudomyxoma survivor, chances are you’ve been affected in some way by pseudomyxoma peritonei (pmp), appendix cancer or another peritoneal surface malignancy. we’re here to provide emotional support and practical advice, through an online community that’s proven to make a real difference. we’re a patient and caregiver run organisation offering advice on managing symptoms and all aspects of living with this rare disease; we advocate for patients and more. as well as all this, we’re people you can share experiences with and share the laughter and the tears. together we’re stronger and can face anything.  news  donate  events  shop  community find out more about our online spaces where you can meet other people affected by pmp, including a ‘secret’ facebook group.  more about pmp we share information about pseudomyxoma peritonei. it isn’t like other types of cancer and it can get confusing. we can help with that.  buddies a one to one, personal and confidential friend to supplement the support already given by your family, friends and doctors. our pseudomyxoma buddies offer a sympathetic ear and insight from their own experience.  about us we offer practical and emotional advice on managing symptoms and all aspects of living with this rare disease, advocate for patients and more. stories from across the world i was misdiagnosed by my first surgical oncologist when someone new to the group posts, you very often see multiple members encourage them to seek an appendix cancer specialist. that was also the case when i found the support group after i was diagnosed in june of last year. i was actually misdiagnosed by my first surgical oncologist who thought it was ovarian cancer and told me that it was well behaved and that they would remove it and i would be fine… read more moas – it’s not a race take your time, there’s no rush, go at your own pace and don’t feel pressured to be at a certain stage, just because someone else is. you’ll get there, in your own time, be happy still to be breathing and above ground…….. read more rare disease day 2018 those of us affected by pseudomyxoma peritonei and appendix cancer are amongst the millions of people affected by rare diseases around the world. as a community, we face huge challenges each and every day. can you imagine going to multiple doctors who cannot diagnose your condition? or being told that you aren’t a candidate for the gold standard of treatment for your disease? or realising available treatment is too expensive? or finding out that there are no surgeons in your country that can treat you? read more from patients and from caregivers being relatively new to the group, i just wanted to say how cool i think it is that we are from all over the world and yet we share and are brought together by something so life changing. it is something that bonds us together in a way that shared nationality or age or gender alone never could. i just wanted to let all of you know how much i value knowing you are out there and supporting each other. linda pmp patient life and its uncertainties are hard enough as a cancer patient but when your income is so low that you don’t have the money to travel to see a cancer specialist, the door of hope and a future for your life is closed to you. that’s what i was facing, but pseudomyxoma survivor gave me a financial grant which opened that door for me so i could travel to see my cancer specialist to get the treatment i desperately needed to save my life. they are lifesavers. r pmp patient when i was first diagnosed with an appendiceal tumour, i was terrified. all the information i found initially on the internet talked about awful outcomes, local doctors knew less than i did, and suddenly i was being treated miles from home. i was very pessimistic about the future. when i found this website, suddenly things started looking more hopeful. sarah appendix cancer patient i found this website extremely useful with answering questions when i was first diagnosed with pseudomyxoma peritonei. i am almost a year post diagnosis and i could not of managed without the support, the answers, the love and hugs sent when you’re down. it’s an amazing site and the support group is full of lovely people. pauline pmp patient helping us to help you shop with us have a look at our t-shirts, technical shirts and more in our shop. what will you buy? visit our shop we need your support pseudomyxoma survivor relies solely on donations to carry out the work that we do. make a donation now specialists and surgeons our directory is updated with information provided by the specialists themselves and is constantly reviewed. find a specialist sign up for our newsletter we publish our newsletter about every 2 to 3 months. we only share when we have something worth talking about. whether you’re a patient or a caregiver affected by pseudomyxoma peritonei (pmp) or appendix cancer, there’s something you’ll be interested in. success! first name last name email subscribe get in touch whether you are a patient or a caregiver, a medical professional, a fundraiser or a donor, we would love to hear from you. maybe you just want to find out more information about these diseases. you can also follow us on facebook , twitter , google+ and youtube . contact pseudomyxoma survivor is a global organisation headquartered in the uk, dedicated to supporting those affected by pmp, appendix cancer and other peritoneal surface malignancies and raising awareness. our patron is sean hepburn ferrer. as survivors and carers, information here is from our perspective - we are not health care professionals. we are all individuals, everyone is different. we recommend that you take advice from your doctors for specific information. pseudomyxoma survivor is a registered charity in england and wales, number 1143642. what we do about our organisation information support for you buddies survivors’ stories get involved become a buddy go to an event raise awareness make a donation about us about our patron webshop links guestbook our supporters privacy and cookies copyright contact us facebook twitter © 2018 pseudomyxoma survivor | havenswift hosting - wordpress hosting | banners we are currently posting orders from our shop no more than once a week. please be patient with us. dismiss

URL analysis for pseudomyxomasurvivor.co.uk

http://www.pseudomyxomasurvivor.org/pmp-specialists/
http://www.pseudomyxomasurvivor.org/links/
http://www.pseudomyxomasurvivor.org/about-pseudomyxoma-survivor/sean-hepburn-ferrer-2/
http://www.pseudomyxomasurvivor.org/about-pseudomyxoma-survivor/supporters/
http://www.pseudomyxomasurvivor.org/contact-us/
http://www.pseudomyxomasurvivor.org/contact-us/
http://www.pseudomyxomasurvivor.org/community/
http://www.pseudomyxomasurvivor.org/pmp-specialists/
http://www.pseudomyxomasurvivor.org/support-us/
http://www.pseudomyxomasurvivor.org/support-us/#awareness
http://www.pseudomyxomasurvivor.org/donate/
http://www.pseudomyxomasurvivor.org/rare-disease-day-2018/
http://www.pseudomyxomasurvivor.org/events/
http://www.pseudomyxomasurvivor.org/cdn-cgi/l/email-protection#167e737a7a79566665736372797b6f6e797b77656364607f60796438796471
http://www.pseudomyxomasurvivor.org/globalnews/
havenswift-hosting.co.uk

Whois Information

Whois is a protocol that is access to registering information. You can reach when the website was registered, when it will be expire, what is contact details of the site with the following informations. In a nutshell, it includes these informations;

Domain name:
pseudomyxomasurvivor.co.uk

Data validation:
Nominet was able to match the registrant's name and address against a 3rd party data source on 03-Apr-2016

Registrar:
Havenswift Consultancy Services t/a Havenswift Hosting [Tag = HAVENSWIFT]
URL: https://www.havenswift-hosting.co.uk

Relevant dates:
Registered on: 29-Aug-2010
Expiry date: 29-Aug-2018
Last updated: 01-Dec-2016

Registration status:
Registered until expiry date.

Name servers:
ns1.havenswift-hosting.co.uk 77.92.92.215 2a02:2498:1:71:225:90ff:fe55:3896
ns2.havenswift-hosting.co.uk 77.92.65.127 2a02:2498:1:71:21f:d0ff:fe3d:9df6
ns3.havenswift-hosting.co.uk 91.109.243.73 2a02:2498:1:227:225:90ff:fec1:5ea8

WHOIS lookup made at 05:08:54 13-Jun-2018

--
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Copyright Nominet UK 1996 - 2018.

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  REFERRER http://www.nominet.org.uk

  REGISTRAR Nominet UK

SERVERS

  SERVER co.uk.whois-servers.net

  ARGS pseudomyxomasurvivor.co.uk

  PORT 43

  TYPE domain

DOMAIN

SPONSOR
Havenswift Consultancy Services t/a Havenswift Hosting [Tag = HAVENSWIFT]
URL: https://www.havenswift-hosting.co.uk
Relevant dates:

  CREATED 29-Aug-2010

  CHANGED 01-Dec-2016

STATUS
Registered until expiry date.

NSERVER

  NS1.HAVENSWIFT-HOSTING.CO.UK 77.92.92.215

  NS2.HAVENSWIFT-HOSTING.CO.UK 77.92.65.127

  NS3.HAVENSWIFT-HOSTING.CO.UK 91.109.243.73

  NAME pseudomyxomasurvivor.co.uk

DISCLAIMER
This WHOIS information is provided for free by Nominet UK the central registry
for .uk domain names. This information and the .uk WHOIS are:
Copyright Nominet UK 1996 - 2018.
You may not access the .uk WHOIS or use any data from it except as permitted
by the terms of use available in full at https://www.nominet.uk/whoisterms,
which includes restrictions on: (A) use of the data for advertising, or its
repackaging, recompilation, redistribution or reuse (B) obscuring, removing
or hiding any or all of this notice and (C) exceeding query rate or volume
limits. The data is provided on an 'as-is' basis and may lag behind the
register. Access may be withdrawn or restricted at any time.

  REGISTERED no

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